Tag Archives: acoustic neuroma

How to Combat Low Vitamin D3 And Seasonal Affective Disorder (SAD)

January can be such a dreary month in Michigan. Even though we’ve had a relatively mild winter so far, and not a lot of lake effect snow band squalls, the sun rarely shines. It’s great to get out in the fresh air, and I have had a relatively easy time with balance. The driveway or in parking lots aren’t always frozen over and slippery to complicate gait/balance and vertigo issues. But, I’ve been noticing since Christmas that I’m exceptionally fatigued. I feel like I should be over that after 13-14 months brain surgery post op. I know that Vitamin D3 levels should be checked with regularity, and I’m not sure mine has ever been checked. I was glad to hear that my new primary care provider wanted to do one a few weeks ago. I was surprised to hear, however, that my levels were even lower than what they consider low. I’m now taking D3 supplements at the urging of the PCP, but also cod liver oil and calcium with magnesium to be sure that bone health is good.

Honestly, I didn’t even realize fatigue was a symptom of low D3. It’s super easy to chalk it up to “I had major brain surgery a year ago, and the tumor void is still healing.”

 

What are the symptoms of low Vitamin D3? (See also Healthline.)

They can be subtle, and you might even chalk them up to other problems or disorders. I’m learning that this is often the case for a lot of disorders or health issues, and that’s why it’s so important to get baseline blood work and testing to be sure the PCP can note changes.

1. Fatigue and tiredness is one.

2. Inability to lose weight.

3. Getting sick or getting infections often. One may also find wounds have difficulty healing.

4. Bone or back pain. With a low D3 level, calcium absorption is not as efficient, so bones could be weaker. This can also be a cause of bone loss.

5. Depression which may or may not be part of Seasonal Affective Disorder.

6. Hair loss.

7. Muscle pain.

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Where does one get Vitamin D3? 

1. Sunshine helps bodies make its own D3.

2. From certain foods like certain mushrooms, egg yolks, salmon, tuna, cod liver oil, herring, sardines, halibut, mackerel, fortified foods like orange juice, cereal, cow’s milk, and soy milk.

D3 is actually a hormone, fat soluble vitamin. You get it from food, sunshine, and supplements. According to Healthline, it may aid in the blocking of fat cell creation and storage, thereby attributing higher levels of it to greater weight reduction. It may also play a role in boosting metabolism.


While doing my research on my Vitamin D3 level and problem, I found out that many of the foods and nutrients mentioned for combatting low levels of it are also the nutrients for health hair and to grow hair.

My free 3-book, 9 Nutrients for Growing Healthy Hair can be found here. I love to share it!

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Seasonal Affective Disorder

Seasonal Affective Disorder is sometimes considered the “winter blues” but it can happen any time of the year. It’s an actual cyclical depression. Some say they have SAD simply because they have low D3, but that may not always be the case.

According to the Mayo Clinic, signs and symptoms of SAD may include:

  • Feeling depressed most of the day, nearly every day
  • Losing interest in activities you once enjoyed
  • Having low energy
  • Having problems with sleeping
  • Experiencing changes in your appetite or weight
  • Feeling sluggish or agitated
  • Having difficulty concentrating
  • Feeling hopeless, worthless or guilty
  • Having frequent thoughts of death or suicide

The cause of SAD is not completely known, but it is noted that circadian rhythms, low serotonin and melatonin levels seem to contribute. Family history, bipolar disorder, and major depression issues also seem to contributing factors.

The Mayo Clinic says “Treatment for seasonal affective disorder may include light therapy, medications, and psychotherapy.” Meditation, relaxation techniques, guided imagery, and music or art therapy may also help.

For either low vitamin D3 or Seasonal Affective Disorder, be sure to reaching out to your healthcare provider for the best ways to deal with your situations. Healthcare is not usually a one size fits all approach. This post should also not be construed as medical advice. It is simply my own research for understanding of my own situation.


To combat my vitamin D3 issue, my PCP recommended supplementation and diet. I’m happy to report that my fatigue symptoms seem to be lifting.

To combat any winter blues and to keep a good mental outlook, not necessarily related to Seasonal Affective Disorder, I’ve opted to create “happy places” or “pampering situations.”

I love changing out homey decorations with soothing colors, and have purchased more indoor plants now that there is no danger of my children eating poisonous leaves. I also love to listen to soothing music and create through crocheting, sewing, or crafting. There is nothing as encouraging as finishing projects! Adult coloring books are a fun activity while relaxing in the evenings too.

As always, I love keeping my mind active through reading and research of topics that interest me. I love that my nursing license credentials come due at the end of January so that I have to be sure I’ve completed enough continuing education credits. I love researching health issues related to myself or my family.

I get monthly massages, eat right, and drink plenty of water. I also try to exercise. And, of course, I am my own best customer when it comes to having new Lilla Rose hair accessories to beautify my hair and brighten up my outlook.

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How do you combat winter blues?

Tell me!

Reflecting On The Every Day Beauty & Every Day Goodness In A Changing Season

It’s been a season for sure, and it’s good to be back! It is vendor show season again, and the busiest time of a retail person’s year. I am thrilled to be back at it, and at shows I had to cancel last November. I’m literally giddy with excitement. Tomorrow morning marks vendor event #3 for November! I spent many hours of my recovery in hopeful expectation that I would be able to face this month as normal! That I’m back at vendor shows is pretty remarkable giving the outcomes that I could have had after last fall’s diagnosis and myriad of other issues our family had in the six weeks leading up to my brain surgery.

In the past couple of months, as I’ve come up on one year of crisis overload, I’ve spent quite a bit of time reflecting on last fall’s traumatic diagnosis of a brain tumor that created gait imbalance conditions, facial paralysis, and single sided deafness. I’ve reflected also on a myriad of large and small things for which to be grateful since diagnosis day.

The Season is Changing.

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It’s been one year, and the sensations of trauma and fear that the tumor was growing back weren’t far from the back of my mind. Last month it was confirmed that the large cavern in my brain created by the tumor and its eviction is still healing, and I’m going to need much more time to finish healing. What was also confirmed, though, is that the tumor is not growing back at this time. Maybe next fall I’ll be able to face the “trauma anniversaries” with a little less fear and trepidation!

After my surgery last November, I spent a few months using a walker and in therapy re-learning how to be steady on my feet, and adjusting to what being single sided deaf is like. In the months leading up to my “one year trauma date”, though, I’d already been back working at vendor shows, doing online work, had driven to New England to be with family for a wedding, preparing freezer meals for our fall homeschool schedule, and had attended a couple of the Lilla Rose Regional trainings. It felt good to be doing “normal” things again, even if all conditions are not back to full normal. While they may never be, I’m grateful at least for “more normal.”

I love that my youngest daughter can play with my hair again! I missed her gentle touch and her “creations.”

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To distract myself from some of the fear and trepidation of “what ifs,” of my upcoming brain MRI and neurosurgeon follow up appointments, I’ve found myself “testing” what more I can do physically that is like my “old normal”, or to try things I’ve never done before. For instance, over the summer we kayaked and rowed a boat, and i did the paddling. I was so grateful not just to find out I’m still capable and love it, but I’m grateful that I get to do it again!

September rolled around, and we were at the apple farm where there is a zip line. Realizing I’ve been granted a second chance, as a person who has never zip lined, I signed the safety waiver, harnessed up, and zip lined for the first time in my life, even though I myself wondered if that was such a good idea! Feelings of not knowing where your head and body are in space because of an impaired vestibular system might make zip lining an inappropriate activity, and even my neurosurgeon was a bit surprised that I had tried it. But I did, and had fun, and probably would even do it again.

In October, the hubby and I took a weekend away. Sleepy Bear Dunes weren’t too far away, and I’ve never climbed the sand dunes. I chose the longest one, the one we hear is most difficult, and had I not run out of water, I believe i would have conquered those hills and miles of shifting sand. Running out of water and getting dehydrated is a real cause for concern for me, so alas, I was not able to finish, going only half way to the lake, despite my will and perseverance to go further. Sometimes wisdom has to win the day. At least now I can say I have climbed sand dunes, and I’m prepared to try again in the spring with extra water bottles on board, and with stronger physical muscles and well being.

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I know this season of my life is changing. My daughters are older, and while they’ve been doing vendor shows and Lilla Rose business with me, they are wanting to pursue other interests. One is graduating this year. Since I am not able to do much lifting and carrying, setting up for shows is going to be more difficult. Expect to see me with a more online presence, working with blogging and influencers. Expect to see me mentoring other women in business who are at home and working moms, who are homeschoolers, who are volunteers, who have chronic illnesses and trauma to overcome, or who are facing seasons of life changes.

I get it. All. I’m walking those seasons, trauma, and chronic illness.

It is all still Every Day Beauty and Every Day Goodness.


One of the most beautiful moments of my recovery, just days after surgery and still in the hospital, obviously not at my best and definitely at the hardest and lowest points of my life, a surprise visitor walked into my room.To say I was stunned would be an understatement.

The owner and CEO of Lilla Rose, developer of the flexi hair clip, flew from warm, sunny California to Chicago, drove 2.5 hours to my hospital room in Michigan in snow and cold to spend a few hours of an afternoon with me and my family. This was during the busiest month of his company’s selling season too. And then he drove back to Chicago to fly back to California. I will always be grateful for this sacrifice of his time and energy and resources. He talked business skills with my children over lunch, visited with my husband, and took their minds off one of the scariest times of their lives too. John Dorsey, owner/CEO of Lilla Rose, is proof of Every Day Beauty and Every Day Goodness. And maybe a little Every Day Crazy too.

Seasons change. Life is hard.

We can choose to live in fear, in failure, in staying stuck, or, we can choose overcoming in Hope and in pressing on. We can choose every day gratitude and goodness in seasonal changes and hardships. We can choose community and collaboration rather than isolation. We can choose celebration of accomplishment in reaching small goals. We can choose a different path or the other fork in the road.


I’d love for you to choose the Lilla Rose fork with me.

Until November 21st. Every Day Beauty with Lilla Rose is proof of more Every Day Goodness with Lilla Rose. There is added bonus to signing up this weekend, so if you’d like to chat with me about that benefit, leave me a comment or a message below.

This is not just a low risk opportunity.

It’s a high benefit, every day beautiful, every day good one, of which I’m grateful to be a part. I’m grateful for continued long range vision and plan with Lilla Rose.

Even as my seasons change, the road is long, the hill is steep, and the sands shift, I’m thankful for the second chances to continue moving forward.

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I wonder what we’ll conquer next! I hope you’ll consider joining and growing with me!

Blessings,

Deb

9 Nutrients For Growing Healthy Hair

As most of my readers know, in October, 2018, I was diagnosed with a benign vestibular schwannoma, or acoustic neuroma as it is also called. It is a tumor that arises off of the vestibular nerve that controls gait, balance, and the main nerve for hearing that connects to the brain. My tumor was a big larger than large, displacing my brain stem, causing shortness of breath, temperature control issues, some hydrocephalus, and necrosis of the tumor. At diagnosis, my situation was deemed critical enough to report to the ER, as it could have been life threatening. There’s a phone call you hate making to your parents, let me tell you.

On November 29th, 2018 my tumor was removed after being on decadron, a steroid, to relieve brain inflammation all that time. My shortness of breath and temperature control issues were managed, but my dizziness, facial numbness, tinnitus, massive fatigue, and hearing loss were not. In fact, the only thing that is not permanent, even after surgery, is facial numbness. I have facial paralysis turned facial synkinesis, but most facial function is returning through time, soft tissue mobilization therapy and neuromuscular retraining. I am permanently deaf in my right ear as the nerve was severed. My tinnitus is permanent because my brain thinks it can still hear. It’s trying to make sense of the sounds it can feel. I do still have occasional dizziness because I worked hard in vestibular therapy, but I’m no longer a fall risk. I have fatigue and brain fog, especially after being around noise. Single sided hearing is a challenge, as sound discernment is often not possible. That may be playing a part in the fatigue and brain fog.

All that being said, while I was recovering from surgery, and after my fabulous not so fashionable neuro-surgical hair cut, I needed to know what I needed to eat and be nutritionally sound to heal well, and to grow my hair back as quickly as I could. I sell hair clips as my business, after all, and hair is needed for demonstrating that.

health, healthy hair, nutrition, hair growth

9 Nutrients for Growing Healthy Hair

In the course of that nutrition research, this e-book, 9 Nutrients for Growing Healthy Hair got written, and it is has literally been how I eat. What else did I have to do, besides lots of vestibular therapy, but focus on writing an e-book and my nutritional status?

I’d love to share it with you. Let me know in the comments if this helps you! I hope it does. You can access it free here.

The good news is that i stayed healthy all the time I’ve been recovering from surgery. My muscles have grown stronger through exercise and therapy. My head where my incision was made healed nicely with no infection. My physical/vestibular therapists have been working on myofascia release in order to prevent cervicogenic dizziness, no scar adhering to my scalp, and to relieve scalp and craniotomy tenderness. My brain mri shows only continued brain stem healing and only scar tissue and a small piece of tumor left to preserve my facial nerve. My facial paralysis is healing.

Diet is not a cure all, nor does it necessarily mean someone will never be sick. Exercise is not a cure all, and maybe it will help in the prevention of future illness.  Good nutritional status does give the best shot at best healing.

I do hope good nutrition continues to help my hair grow! The shaved sections of my head now have hair that is at my ear lobe. My goal is to have grown out my surgical hair cut by November, a full year since surgery. My hair styling technique is very boring while I wait for that to happen.

Goals are good. Good nutrition is good. Exercise is good. Keeping it all in balance-that’s good too.

Blessings,

Deb